Zenda,

I to am an ORN/Trismus victim/survivor and can relate somewhat to your situation. I never suffered as bad as only a 1mm spacing between upper and lower teeth but did get as low as 8mm. I am now at 26mm, about half of normal for an adult male. I did a total of 40 HBO dives but still developed ORN that is currently under control. One of my greatest fears in life at this point is the thought of having to have a lower tooth extraction in the future. I am under the care of an Oral Surgeon M.D. who is very much in tune with cases such as mine and that is what I would suggest for you. It may require some searching and don't know if there would be one close to where you live. I guess I am fortunate to be close to a large city (Atlanta) to where availability was not an issue.

Good luck,

Bill Dozier


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.