Thank you guys! It is a rough morning! He's in pain, can't swallow and has so much goop. Says it is constantly filling up his mouth. I will make some of the water rinse for him today. He was eating eggs in am up until yesterday. It is like treatments 32-35 of radiation kicked his proverbial behind!! I thought we were getting off easy! :o(

He is depressed and filled with self loathing! He refuses professional help and also refuses to go to any of the groups or community wellness activities! :o(

Please feel free to email him at [email protected] He will be checking email! I think it would help for him to hear from some of you who have had similar experiences!!

I have him on gatorade for 40oz during the day while taking in sparking water by mouth as he can... (Not a full can a day, but keeps the throat thinking of swallowing.)

Jevity is at 5 cans over night. He has about 3 hours off of the feeding tube each day.

On to researching which pills I can crush and dissolve into liquid for feeding tube admin. Any ideas?


Wife of Tom, 42
SCC/Tonsil DX 9/23/2010
PEG/Port 11/2010
TX Begins 11/16/2010
Chemo ended 12/28/2010
Radiation ended 1/6/2011
Neutropenia 1/7/2011
Osteoradionecrosis 09/2011
Jaw Resection/Flap 01/2012
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