Thank you guys! It is a rough morning! He's in pain, can't swallow and has so much goop. Says it is constantly filling up his mouth. I will make some of the water rinse for him today. He was eating eggs in am up until yesterday. It is like treatments 32-35 of radiation kicked his proverbial behind!! I thought we were getting off easy! :o(
He is depressed and filled with self loathing! He refuses professional help and also refuses to go to any of the groups or community wellness activities! :o(
Please feel free to email him at
[email protected] He will be checking email! I think it would help for him to hear from some of you who have had similar experiences!!
I have him on gatorade for 40oz during the day while taking in sparking water by mouth as he can... (Not a full can a day, but keeps the throat thinking of swallowing.)
Jevity is at 5 cans over night. He has about 3 hours off of the feeding tube each day.
On to researching which pills I can crush and dissolve into liquid for feeding tube admin. Any ideas?