 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | He still needs to exercise those swallowing muscles as they can "forget" their purpose quickly which can lead to post Tx swallowing problems.
Also make sure that he is getting at least 48 ozs of water (in addition to everything else)to prevent dehydration and everything that follows.
I also lost the hair on the back of my head and my whiskers. The only thing that didn't come back was the whiskers below my chin line.
Be careful of the Cisplatin as it can cause permanent hearing loss so if he hears "ringing in his ears" he needs to tell his docs immediately. There are basically 2 accepted delivery methods for Cisplatin. Three times during the radiation and every week or six times during radiation. The ones here that have had the weekly method do not seem to be affected by it's nasty side effects as much as those of us that got the BIG 3 method.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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