mainly they say not to drink because drinking in itself can cause this, but if you aren't drinking that much then eh!! I honestly wish i could have one or two every now and then without pain. I am only 26 afterall!!
As for taste, it's all silly!! Everything that was slightly spicy is extremely spicy now, and even some stuff with tomatoes with no spicy in it tastes spicy, like pizza, spaghetti stuff like that. I also don't like pickles, mustard, ketchup anymore. I used to love ice cream, but now i only eat like a few bites, and then i lose the taste of it, and it just tastes like frozen milk, and also can't stand mint stuff as it's almost always too strong, oy. Also don't like a lot of things i used to love, but oh well, i am alive and getting ready to go back to work and school finally after being out of both for 7 months.
Oh and i can't tolerate pop or very bubbly things due to pain from bubbles, but not so much of a bad thing.
I look at it as kind of a loss, cuz it doesn't make my love for cooking/baking as fun anymore, but I am alive, and able to maintain my weight better now that I don't like all of those things anymore, laugh


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010