Hi Bethers,
I am about 18 months post treatment. My taste is basically to normal. However, many things that aren't spicy taste too hot for me. For example, last week I found crab soup and a balsalmic dressing too spicy! I can now handle carbonation (limited amounts of beer and diet soda) with ease but had to stop drinking wine (metallic taste).
I would say that my ability to handle acidic foods or carbonation was very up-in-the-air for the first 9 months post treatment. What I could handle or crave would change even week to week.
Most everything is normal at this point. Occasionally, I am surprised (like the crab soup and dressing) but most things are predictable. However, I do find myself subconsciously avoiding foods that require more chewing (grilled meats) but that seems natural with limited saliva.
Good luck with the biopsy! Hoping for good results!
Age 23 at Dx - Oral Tongue SCC, Stage IV, T3N2bM0, HVP-negative
Non-smoker, occasional beer, exercise daily
Treated at MD Anderson (consults at Johns Hopkins and Sloan Kettering)
3/2009, 6 rounds paclitaxel, carboplatin, cetuximab
5/2009, Partial glossectomy and left-neck dissection (39 nodes removed)
6/2009, IMRT 60 Gy in 30 fractions, PEG
10/2010, Spontaneous Pneumonmediastinum
Now, Still doing great with minor long term side effects (low WBC, neuropathy, arthritis in jaw)
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