Hi David
Sorry this has been such a difficult journey for you.

I'm not sure if this is fate or someone trying to tell me something but my daughter called last night and said my granddaughter was doing a school project and needed a list of three generations and all their illnesses. Strange timeing!

It is a long sad story but I haven't seen or heard from my father since I was four and found out he passed away on his 62nd birthday the year before I found the info on the internet. I was able to obtain his death certificate.
For some reason I had thought he died of a heart attack but today looking at the certificate it says he died of throat and lung cancer. Of course I'm sure he was a smoker and lung and throat cancer are common. The thing is my daughter also had cancer of the thyroid in her 30's.

btw my fathers name was david!

I just find it a strange coincidence this was brought to my attention the day after my appt. with the ent.
Wonder if I'm reading too much into this.

I'm having two more tests next week so maybe I will know more soon. The problem is I have no regular doctor. I go to a free clinc and they work with doctors that reduce thier fees but whenever I go to the clinic I see someone new and usually nurse practioners. I'm very happy and grateful to be getting the care I'm getting but it does make me anxious not having someone putting the pieces together(A primary).

Lastly just to make it all more puzzling there is a possibility I have NF1. The neourolgist I saw several years ago for severe migranges was hesitant to dx without three onfirmed findings. I only have two that were found.
The common cafe au lait brith marks and scoliosis.
Still looking at at info on this sight and others there are soft sarcomas especially with NF1 and I wonder if all ent would be able to recognize cancer from a rare disease that does sometimes present orally.

It is a lot for my little pea brain to take in!




Thanks for your help!!

Brenda