We got news from our ENT that my wife has indeed OSTEOMYELTIS. When we saw our ENT a week ago we had left with him a DVD of the MRI images.

The ENT had the MRI images reviewed by a radiologist at our CCC and the conclusion was that it is OSTEOMYELITIS. The MRI was done at Huntington Memorial Hospital since Huntington has an open MRI machine. The radiologist at Huntington had also concluded that it was OSTEOMYELITIS.

We are confused because the radiology report of CT scan done at our CCC in mid September did not say anything about OSTEOMYELITIS.

My wife so far has had eight infusions of the antibiotic including the one today. I change the IV antibiotic bag in the morning before heading for work.

For the fist 5 days there was a slight improvement with less pain and face swelling. But then the pain came back strong. She has also a times severe headaches and nausea.

We have discussed doing HBO treatments in conjunction with the antibiotic treatments with the infectious disease doctor and he feels that this may help. His staff is making arrangements for us for HBO treatments.

The infectious disease doctor also recommended surgery in conjunction with IV antibiotics. Our ENT however is strongly opposed to doing any surgery.

I would like to thank all who responded and your help. I would like to hear about your experiences with OSTEOMYELITIS. We are worried about this condition.



CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations