Thank you everyone for your suggestion and great advice and experiences. I am sorry to be so impatient for info, but as you can imagine I am a bit frightened about all of this. I thought the worst was in the past. I was even getting my sense of taste back! It is very hard to eat. I have lost 15 lbs in the past couple weeks. (Down to 138 lbs - I am 5'10") Since I have posted this I have emailed both my Radiation Oncologist and ENT. (awaiting response) I am hoping and praying that this is just from the swelling in my neck and will go away with time. I pray it's neither Trismus or Lymphedema. I am already under incredible amounts of stress due to fighting with my employer for continued coverage of health benefits and need to return to work cause the $$ has run out. That is neither here nor there, right now I am just overwhelmed and scared.
Thank you all for your well wishes.


32 Yrs. Male
Diagnosed 3/17/10
SCC right side of tongue stage 2
Surgery 4/20/10
Right hemiglossectomy
Right selective neck dissection levels 1-4
Right anterolateral thigh free flap
Tracheotomy
31 radiation treatments
Nov. PET and CT showed something, hopefully nothing awaiting confirmation