When did your hubby finish treatments? Mine had his last rad on 8/3 and his last chemo on 8/6. The first two weeks post treatment, I wondered if he had the will to continue...it was EXTREMELY hard. He didn't have a peg and he had no desire to take in fluids or calories. At the time, it was really difficult for me to visualize a life post-treatment that in anyway resembled our life pre-treatment. Then, when things started to get a tiny bit better he got knocked down by a staph infection.

Now, he's on day 50 of his recovery and things are going remarkably well. He finished tapering off of the pain meds on September 17th and he has been eating solid foods the past couple of weeks (even though most don't taste good). He is driving again (yay!!! I needed help with soccer car pools) and he is mentally much more alert. He also manages his own medications. (He is on Evoxac for help with saliva and an antidepressant)

He still struggles with bouts of extreme fatigue and occasional nausea. But, it's manageable. We are hoping he will be able to return to work within one to two months.

I do think it will take a long time for him to get back to his pre-treatment energy level. Right now, it works for us. Our bedroom has become the new living center. He generally has to lie down after dinner, so the kids do there homework in our bedroom...and, that's where the bulk of our family time is spent. We all retire to sleep much earlier than before he was in treatment, which has made the school mornings much easier.

The past 2 weeks the healing has been monumental. I don't expect every 2 weeks to be so huge. But, I am happy that there are many more good days than bad.

PHightower, I hope your hubby turns the corner soon. I agree with what everyone is saying. Yes, it takes a heck of a long time to recover. And, everyone does it at there own rate. But, the whole 7 months is not all bad...it's a constant adaptation to a new normal.

This past weekend, we had to drive 2 hours to go to my son's soccer game. My husband drove there and back...I was amazed. And, we added a few hours to the trip so we could spend some family time hanging out in the town we were in. It was fun. We had to take rest breaks, and finding foods that he could tolerate was a little tricky, but it was a really great day. A month ago, I didn't think those kind of days were in the cards for us...it was that bad. So, hold out hope, it will get better.

And, I am also learning to manage my expectations. He rarely has two good days in a row. It's more like one giant step forward and then a couple of litte steps back followed by another leap forward. Staying positive is hard sometimes, but overall the more progress we are seeing the easier that gets.

Good luck!


Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.