 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Susan
You are doing very well with maintaining yourself without using the feeding tube. Make sure you flush it daily even if you arent using it. The next few weeks will unfortunately get progressively worse. After rad is finished, it takes about 2 - 3 weeks before you start to feel a little better. As far as your sense of taste goes, it can take up to 2 years before it is finished recouperating. I started to regain it after about 3 months post tx. You are doing great, best of luck with your treatments and recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
