I might add to this about the article... this wasn't going to happen at all. They were going to write a couple line obituary and be done with Petey. You'd think that the writer that worked with Petey on the beginging of his story (that he had to chase her for, and create interest in her for, in the first place) would want to write something powerful to end the story. Something that would speak to the issues, something that would show the impact that he had. Something that would talk about how he fought for others that will get this disease. But no. OCF's PR advisory Kari Kramer had to call the writer in FL and convince her to do even this little piece. In the writer's mind Petey was already yesterday's news. We couldn't even interest her in doing a piece that talked about how the poor guy ended up dying for a disease, -that had anyone in Florida pulled their heads out of the rear ends earlier in the process - he might have survived. It all just sucks. Sad does not even describe how I feel about it all. I hope this writer stays at her podunk newspaper and never gets a break into a real news market. She wouldn't recognize an important story if it bit her on the ass. I guess how tired I am of some of this is showing through....


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.