MGoldstein

Sorry your mum has to deal with this disease. I had a similar diagnosis to your mothers and have had all the treatments you've mentioned, mine had spread to one of my lymph nodes. I've had nearly all of my tongue removed and a flap reconstructed.

If you haven't already, get a 2nd and/or 3rd opinion from a Comprehensive Cancer Centre (CCC). If you do a search here on the forum you will find the lists for centres in the US.

The treatments are tough but they are doable. My speech has improved over time. My jaw bone was rebuilt with bone from my hip. There are others who have had their jaw reconstructed with bone from their leg (fibula).

I also had radiotherapy and chemotherapy, but I don't have any information on SBRT.

Wishing you and your mum all the best

Karen