Tony, I am so sorry to read you are suffering in pain. I take neurontin which is for muscle pain. It works wonders on the jaw pain. Ive had the pain you describe, its awful. Please get something stronger. How about the fentanyl patches? They are long lasting, only has to be changed every 3 days and is the strongest stuff out there. Oxycodone comes in liquid form as does the neurontin. They go down the peg tube nicely. I would ask the doc for the fentanyl patch, the neurontin for the muscle pain and also oxycodone for breakthru pain. That should make you feel so much better.

I still have trismus. I stretch my mouth a couple times per day. Mine is so bad that the dentist cant even get the mold in my mouth to make dentures. I had my teeth removed last year and instead of getting dentures, I ended up getting OC again and no teeth. My teeth were badly damaged by radiation and had to be removed. Overall, Im ok with this. Im very fortunate to even be here after going thru OC 3 times in 3 years. I can work on my trismus and eventually get my mouth open wide enough for the dentures, but thats down the road. First I am doing some reconstruction surgery.

Please keep posting on your progress. You have alot of people here in your corner pulling for you. Sure hope you get some pain relief very soon. Hang in there buddy!!!!