 "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Susan,
I never did get fully adjusted to that dang tube hanging out of me! But, I did figure out ways to minimize the inconvenience. My surgeon recommended making a tab out of cloth tape and using a safety pin to pin it to my bra, which worked really well for me. I know others wrapped it down with a wide Ace Bandage but I never had success with that technique. I also tended to wear shirts that were slightly too large so no strange bulges were visible.
As far as the flushing, what are you doing now? I'm not sure I remember what I did, exactly, but there are plenty of other folks who can probably help you out!
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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