Welcome Jules.

I'm sorry to see what a tough time you have had - and at a young age. I believe you are doing the right thing, wanting as much info as possible about your treatment regime. Yes, we do need to trust our docs but we need to know that they are following the latest recommended practices. Have you read Lance Armstrong's book 'It's not about the bike'?. He changed his doc and treatment plans when he felt he needed to. It is an uplifting book.

I know your family will support you as you undertake more treatment. The OCF family is here for you also. Some members will have travelled a very similar path.

Thinking of you and wishing you well on 24th, love from Helen