Wow David - that is a lot to take on. Good for you stepping up and being her advocate. Even the "BEST" hospitals don't always have the best nursing care. My mom was in Johns Hopkins a few years ago to have the "whipple" surgery for pancreatic cancer. One of us stayed with her round the clock due to terrible nursing care. Her surgeon was #1 but the rest of her care, not so much.

I work in a hospital and I won't even give you the statistics as to how many elderly start a downward decline that they never recover from due to a broken hip. Hang in there!

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2