Well today was another dr's visit for my sister. We called and was scene right away because my sister has developed a lump on her tongue right where the flap meets the tongue. Another set back!! So they said they think it might be a granuloma but thy are not sure so they did a biopsy. Words can not express how scared I am right now. I do not understand how cancer might have comeback 3 weeks post surgery with clear margins. IF this is how I feel I can not imagine how my sister feels. She went through this huge procedure, isn't even healed yet and now this!! This roller coaster of ups and downs is so difficult. We also found out from the oncologist that was trying to ge a referel for radiation that her insurance expired today. What? She filled out her renewal in March and someone is sitting on it. Lost somewhere and we didn't even get a notice. This has been so difficult on my family. Both my family and my sister can not see the light at the tunnel with all that has been going on. I'm starting not to see it either.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads 1/10/2011 Clear PET!!!
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