My next visit to the CCC clinic is not until September and even then my last 2 previous 6 monthly visits were unsatisfactory for me.
In short 5 minutes doctor time with only one member of the team even though the others were there in the back room.
I was able to get a private appointment at the same hospital with the (very experienced in cancer) Oral Surgeon who performed my initial biopsies in 2006 and who I had not seen since.
I was very happy with the outcome as I felt that my issues were recognised and there is now a plan smile
I have a nearly constant burning of the tongue/flap and a short summary below.
1. Flap is still a little bulky but we will leave it for the moment..had debulking done previously with little success...was happy that it was even acknowledged.
2. There is still some obvious lukoplakia which I knew from my last clinic visit and at some stage we could do some laser resection...in the meantime need to keep an eye on it.
3. The �Raw spot Feeling� and �Burning Mouth Syndrome� could be due to damaged nerves/nerve endings from surgery(Neuropathic pain).

My next appointment is in 8 weeks.

So my question at last is that I will be trialing Endep 25 mg at night which is an antidepressant.

This is my first experience with antidepressants and I am wondering if anyone else has had them prescribed for this situation?

History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family