Hey Folks Just wanted to say hi! yeah I know it's been a while; plus I'll be honest I also spend some time on the other site for the American Cancer Society for Head and Neck Cancer. Also, I tend to stay off the site going through the treatment because i always managed to find the hidden posts that talked about recurrence and negative stuff. I want nothing but positive right now in my life.

Anyway, Monday will be dose 33/33 for radiation. The right side of my neck is pretty raw; I would say it's pretty close to 2 degree burn. Left side is 1 degree. They supposedly did 56 gry to back of throat, 67 gray to right side of neck, and 56 gry to left side of neck. Wed will be my 3rd and last dose of Cisplatin (3/3). I tend to over analyze things so I'm not sure about side effects yet. I feel like everytime I sit down for chem I'm playing a game of Russian Roulette. So far I think I have noticed some intermittent tinitus to the right ear. Also, sometimes I think I have some numbness to my toes. But like I said I could be over analyzing. I did have PEG tube put in 3 weeks ago. I'm so glad i did. So far lost about 28 lbs. Seem to be managing now. I just can't wait for the healing to begin. I've lost most of my voice and have difficulty swallowing between the pain and the thick mucus causing me to gag! Well I just wanted to post status. It's all in GODS hands now!! God Bless!

Charles


Charles

HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.

Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.