POSTED ON ANOTHER THREAD BY BRIAN HILL:
Wouldn't it be nice if ACS did anything at all for oral cancer? Perhaps in Australia they do. Here in the US, they are great at many things, but oral cancer? Not so much. You know early detecton programs, free public screenings, funding research related to it specifically, spending money on raising public awareness, something more than refer 25+ people a week to OCF for things. I think everyone that has an opportunity to support organizations that are trying to bring down cancer should do so. If ony OCF were as good at fundrasing as ACS..... I mean they really have this down to a science, and the staff to do it. For a disease that isn't waiting on new science to bring it down from the high list of killers, what we could do with a fraction of ACS's one month's take. We are a thIrd of the way through this month and donations to OCF are at about $192.00. At this rate we'll be lucky to have the message board up in three months. Sorry for sounding bitter. All organizations are trying to do good in the world, big or small. But too many of the small ones survive less than 5 years. Not because they do not do good in the world, but because they represent a small disease, with fewer survivors than say breast cancer. Fewer people getting it and fewer survivors = fewer donors and fewer volunteers helping you to bring in the needed funding. Then they are gone.

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Brian, stage 3/4 oral cancer survivor. OCF Founder and Director. "The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant."


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!