"Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Sandy,
The logistics go right out the window when patients are not getting the best treatment available. There are a hundred horror stories right here on this site about miss-diagnoses, bad treatment, wrong treatment, not enough treatment, too much treatment......
I drove an hour each way to my cancer center. I got two second opinions from CCC's at Penn and U of Michigan. I almost moved to Ann Arbor to be treated at U of M but they said I would get the same treatment at the facility an hour from my house.
You definitely want the folks at Moffit to look at you. They may recommend a place closer to you to get your treatment or you may elect to go with them, but either way you will know you have been seen by the best. If you ever have a doubt about a local treatment you will be able to check back in with the best.
Keep in mind that the core intense treatment for this disease should only last about two months. After that there is a good deal of follow-up but not an intense schedule.
This is what I was prepared for, taking two months out of my life to save my life.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
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