Eileen,

Where did that come from? You must not read my posts as I often remind people I'm not a doctor and I always qualify my statements in case I have forgotten previous posters treatments.

And as far as questioning doctors, my God we do that every day on this site and many many times the people on this site have been directly responsible for beneficial "adjustments" to a previously decided treatment plan. Every single time we recommend a second or third opinion aren't we second guessing the first doctor? Every time we recommend a different pain med or a different dosage aren't we question their doctor? Every time we suggest a PEG or not a PEG, we do the same thing. Every time I read that a likely HPV+ patient HAD a RND and only 1 out of 24 nodes came back positive I wish I had been there to recommend a second opinion from a CCC that likely would have avoided unnecessary surgery. I can go on and on about the many ways we question their doctors.

The sad/tragic facts are that there is a great disparity of knowledge within the oral cancer treating community of doctors and If I have goal on this site and that is to compare a posters treatment plan to what I think a CCC might recommend and if I think it might be different at a CCC then I encourage another opinion.

Putting that aside, my main concern still exists and that is this cancer is most likely caused by tobacco and certainly is HPV- which has proven to be more aggressive and Cisplatin is still the chemo of choice and we usually get one shot at killing it so IMO (and by the way that's what all of our posts are) I would opt for Cis especially with the weekly bags which seem to be less toxic at least until I saw it was affecting my hearing as I would rather not hear too well if it meant I would continue to live.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.