| |        |   |   |  |   |  Joined:  Mar 2009 Posts: 147 Senior Member (100+ posts) |   |   Senior Member (100+ posts) 
 Joined:  Mar 2009 Posts: 147 |  Jack, yes I am currently taking Pilocarpine.  5 mg 3X/day and have been for about 10 months and it definitely helps.  At first, I noticed the sweating and runny nose and for periods of times I would only take it once or twice a day rather than the 3X as prescribed; However, I do not notice those side affects any longer.  About two months ago I decided to stop taking it for awhile and see if it really was helping or if my saliva was just getting better.  Well it only took a few days for me to realize the pilocarpine was helping, so I am back on it.  A real mile stone for me was about 6 weeks ago when I actually had enough saliva to lick an envelope!  Woo-Hoo.  Good Luck.  Carmen   DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss;  Clear PET 09/09 and 09/10
 
 |  |  |   |   | Entire Thread |        |    Hello, I'm new here, | Jack W | 05-14-2010 03:07 AM |   |    Re: Hello, I'm new here, | Kelly211 | 05-14-2010 04:11 AM |   |    Re: Hello, I'm new here, | davidcpa | 05-14-2010 12:40 PM |   |    Re: Hello, I'm new here, | Dianne MH | 05-14-2010 02:39 PM |   |    Re: Hello, I'm new here, | davidcpa | 05-14-2010 06:53 PM |   |    Re: Hello, I'm new here, | ESikon | 05-14-2010 07:47 PM |   |    Re: Hello, I'm new here, | EzJim | 05-14-2010 10:04 PM |   |    Re: Hello, I'm new here, | ChristineB | 05-15-2010 04:07 AM |   |    Re: Hello, I'm new here, | Jack W | 05-15-2010 01:15 PM |   |    Re: Hello, I'm new here, | Jack W | 05-15-2010 01:20 PM |   |    Re: Hello, I'm new here, | William Dozier | 05-15-2010 01:27 PM |   |    Re: Hello, I'm new here, | Jack W | 05-15-2010 01:39 PM |   |    Re: Hello, I'm new here, | Charm2017 | 05-15-2010 04:08 PM |   |    Re: Hello, I'm new here, | Jack W | 05-19-2010 02:15 PM |   |    Re: Hello, I'm new here, | David2 | 05-19-2010 04:26 PM |   |    Re: Hello, I'm new here, | Carmen M | 05-20-2010 01:29 AM |   |    Re: Hello, I'm new here, | Dianne MH | 05-20-2010 02:20 AM |   |    Re: Hello, I'm new here, | Dianne MH | 05-20-2010 02:23 AM |   |    Re: Hello, I'm new here, | Jack W | 05-20-2010 02:48 AM |   |    Re: Hello, I'm new here, | hubbedbee | 05-20-2010 02:58 AM |   |    Re: Hello, I'm new here, | Jack W | 05-20-2010 03:16 AM |   |    Re: Hello, I'm new here, | Jack W | 05-21-2010 01:55 AM |   |    Re: Hello, I'm new here, | Carmen M | 05-21-2010 03:54 AM |   |    Re: Hello, I'm new here, | LeftyS7 | 12-13-2012 11:47 PM |  |      |      | Forums23 Topics18,278 Posts197,204 Members13,413 |  | Most Online2,371Sep 11th, 2025
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