 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Netsky, I am sorry to read about your father. As several people have mentioned...pain patches will ease his pain. It is changed every 3 days and he should have something for breakthru pain too. By now I am hoping he has gotten on the fentanyl patch.
If he failed the swallow test, how is he taking in anything? water? medicine?. No wonder he feels so bad, malnourished and probably dehydrated on top of everything else. Poor man. He needs some type of feeding tube right away!!!
When I read posts about someone suffering like this, its so unfair. Is he being treated at a cancer center? It doesnt sound like the doctors are on top of his care at all. Speak up til you get results.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
