Bilateral presentation of the disease is very unusual. Also people that develop lesions that the find on their own do so before this gets so far out of hand that there are multiple lesions, it does get larger with time, but "in general" is not a disease that produces lots of lesions in various locations at the same time.

You have normal structures in those areas that might be mistaken by a non professional for something dangerous. For instance there are definitely lingual tonsils, located on the very posterior edges of your tongue, usually flame shaped, but can take other more subtle forms. New students (and patients) often are surprised to see these, as most of us never notice them. What you describe as cauliflower shaped, is likely a papilloma, some of which are significant and part of a malignant formation, others are benign and of no concern. It will take a professional to look at them in real life to tell you if those are something of importance, and if they warrant biopsy.

Posting images here, is not a good idea, as we are not doctors, and we do not wish to lead you in a wrong direction. Please have a professional take a look.

Should someone you see think that they are deserving of biopsy, most of the time this is a simple process, done by any oral surgeon or many ENT's, who will send it on to an oral pathology department for a black and white, gold standard telling of exactly what it is. If you are an extremely anxious person, you could be given a tablet of some anti-anxiety med to take an hour before your procedure, but to be honest, they will just give you a small injection of lidocane to numb the area, and in 5 minutes it will be all over. For most, it is far less unpleasant experience than things you have likely already had done in the course of normal dental procedures in your mouth.

Congratulations on your 5 year anniversary being free of Hodgkin's. 5 years NED is the landmark in most cancers, where people breath a bit easier.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.