OP  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | No it started from one day Brian seeing my post on another oral cancer site that I had just found and e mailing me and saying " why don't you come over to my site, it's much better." Boy was he right. On the other site I would post in need and MAYBE 2 days later I would get ONE response!! On this site I posted my first HELP question and within 15 minutes I had 5 responses!!! The only time I went back to the other site was to tell people about the OCF site. Ginny, The tissue in the Oropharynx region is the same type of tissue that's present in the cervix, anus and penis and is the type of tissue that the HPV virus can and does attack. I don't think the rest of the oral cavity has this type of tissue so that's why it's only been found in that region.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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