Hi Kent- I hear you. Its the hardest decision. From what I've been told from my Drs. and what I have read for some reason the treatment protocol for tongue cancers is different with the anterior tongue and base of tongue. I think maybe the tissue is a little different? My Drs. were in disagreement and that made things tough for me. Of course I wasn't excited to sign up for this gruesome surgery that would change my life forever but they thought it was the best option for a cure and survival. My surgeon was VERY very adament about getting the cancer out of my body ASAP and following up with radiation and chemo. I don't know if it was the pathology of the tumor that made him think this way but he was pretty sure that the tumor would just come back if chemo and radiation were given first and surgery after radiation and chemo is much more complicated and risky. Your skin doesn't heal as well- your blood vessels are more delicate. I've heard some horror stories. There are successes yes of course-- but these are very real risks that can lead to major complications. Get all the info that you need to make the best informed decision for your situation. The surgery sounds horrible and it was REALLY tough but you'll recover from it if you do have to have it. The human body is amazing at healing itself and readapting.

Now I'm sure that people have had success with just chemo and radiation. Apparently this Greg Atchatz chef has. At University of Chicago they are doing some sort of new radiation therapy that has worked for him. You will be able to function after this surgery. Its a very difficult road but doable. I am 3 years out and have made more progress than I ever thought possible while I was laid up in ICU with tubes, drains IVs and a pen and pad wondering what life would be life for me.

If you do go ahead with this surgery you have a big support system here with people who have been through it all. Wishing you a full recovery from this disease and relief from pain. I know how much pain you are in. Its truly awful. I was on the verge of tears for 3 months popping Advil every hour. Definitely make sure you get enough pain medication and anti anxiety drugs to get through this. Its pretty rough!

Hang in there Kent. Be strong. You'll get through this.