Hi Liz:
I have been following your posts, and want you to know how sorry I am about the loss of your husband. I hate hearing stories like that because I have had several misguided diagnoses from my doctors prior to being diagnosed with tonsil cancer. When I first noticed a swollen place on the right side under my chin in mid-2007, my general practitioner diagnosed it as a swollen lymph node from a sinus infection. Several weeks later, I called because the swollen place was still there - the nurses told me I was paranoid and not to worry - they have such things all the time and mine will go away - yeah, right! After several more weeks went by, I decided to go to an ENT on my own. He checked my throat and said my right tonsil was a little swollen, so he did a needle biopsy of the area under my chin, which came back NEGATIVE. I waited another several weeks and since the swollen place was still there, I went to yet another ENT. He didn't think I had a problem but suggested I have my tonsils removed since they looked "irritated." Well, after surgery, I ended up with SCC under where my tonsils had been, plus it had spread to the lymph nodes. Thus, the radiation and chemo, and fears for the future. Anyway, what I wanted to say is that I am a retired 30-year technical illustrator/editor, and will be glad to help with your brochere in any way I can. Just let me know. Again, so sorry for the loss of your soul mate.
julieann
Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer