Hi Suzy,
I had PT twice a week for many months by a PT that specializes in Head and Neck problems and it really helped the lymphedema. You need to find a physical therapist that knows how to massage your neck to deal with the lymphedema. This may be difficult in since you are in a rural area but you could get lucky. Have you asked at the hospital for a referral?

Take cate,
Eileen


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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I