Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Susan,
I'm so sorry you and your family have to go through this. It's all so scary and I know you have tons of questions that run through your mind, please find comfort here and feel free to ask away.
I had 2 nodes that were "suspicious" on my scans when first diagnosed. I let them hit me with everything to knock the cancer out including getting a neck dissection. The only way to know if it's CA is to do the biopsy. When they did the surgery, they took 56 nodes out and 10 showed up cancerous at various levels, which my doctors were surprised that so many were found since I didn't have any visible signs of it.
I'm not sure my scenario helped any but I hope someone else is able to answer your questions specifically better than I did.
Let us know how his appt goes.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
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