Great news. Got an invite from Steve's hospital the other day. They are trying to form a support group for patients and their families who have head and neck cancer. Yahoo. I've searched high and low to find a support group specific to what we deal with and over a distance of approx 200km haven't found one yet. Or even found one listed within Australia. This is a service so badly needed. I know there were about 61 patients (read this in a report) with head and neck cancers attending our hospital at the same time Steve was having treatment but not once did we meet them. As far as I know also, they are not on this site. I often have wondered how other people cope.

So there's a meeting set to take place on the 31st of March. You better believe it, I will be there smile

About time Australia came out of the dark ages in regards to this disease.

Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
17/03/22 lost the battle. Missed dearly