OP  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Moffitt is doing their part for OC month in April.
I was just informed that they will set aside 1 week in April and have some OC event every day. They want me to speak as often as I can which I naturally have agreed to. They also are filming a series of videos for their website on Mar 4 and want me to be one of the ones they film which I naturally agreed to.
In exchange for this (how timely) I "persuaded" my Dr Trotti to rearrange his schedule Monday to see a client of mine that just was told he had a positive node. He spent the afternoon getting all his files, slides and PET report together and we have to be at Moffitt Monday at 7:30 am. Dr T leaves on a trip Tues for a week so he plans to spend the entire Monday arranging everything to be done, including a visit with my Oral Surgeon (Occult Primary as of now) so that when he returns a week from Wed radiation/chemo can begin.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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