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| | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Mike
Well, if my experience with a PEG is any guidance, your PEG tube is fast approaching the end of its useful life. I am now on a 6 month replacement schedule after going through 2 PEGS since March 2009. Both tubes started to leak between the stomach and intake valve. I had only used Jevity in them as even Ensure was a little thick for the gravity bag and had to be syringed. Unfortunately, I can't give you any more advice based on experience since my scarring and the amount of base of tongue taken out don't let me do any food, either solid or liquid by mouth. If I ever get to your stage again of being able to do 100% oral intake, I'd get my PEG out after two weeks but that's just because I hate it and two weeks seems long enough that 100% oral intake was not a fluke. Congratulations on being able to swallow. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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