OP  Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Thanks!
I finally got a hold of my nutrionist today about my PEG. I was wanting a new one since my stitch came out and I need something faster to feed, of course I only have a 12fr and it sucks, I can't push the food in! She thought I was eating 50% by mouth in addition to the 1200 calories I was getting per peg. I don't know where the communication fell since I have access to my medical record and can see she clearly knew last visit what I had told her since its in her report. UGH!!! So frustrating!!!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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