Hey everyone our dear friend Jerry asked how I'm doing with my problem via email and I decided to share with the forum to the fact when everything comes back A-O-K, I can remember this stressful time better in order to help someone else down the road. No need to worry I will be fine--stay strong<----thats what I tell myself...I have too...it's the only way to go




Well Jerry,

I see my ENT this coming Tuesday at 9am. The best way to describe what I have is like a pair of jeans that keep on tearing. Right where the tumor was a small hole/tear developed and since it first showed up it has gotten longer and longer. Though, it's not getting deeper and I have to take that as a good sign. Both my ENT and RO told me it's scar tissue that has deteriorated due to the radiation treatments. I know that my ENT will schedule a biopsy in two weeks from this coming Tuesday and as long as everything comes back negative, I will then be sent in for HBO treatments. I am currently taking Trental to help develop better blood flow and Triamcinolone Acetonide (yes--I read the box!!) a steroid paste to help the healing process. My RO says I have to be patient with this--because once someone has radiation the whole healing process has drastically changed. It's easier said then done but patience is a virtue!! In addition to my ENT and RO I did see my PD, a PA, and another ENT--they all thought the same thing--scar tissue deterioration.

I have to trust my doctors but if the cancer is back I will do my best to get into a CCC. I had trouble due to insurance but there has to be a loophole. I will deal with that when and if the time comes.

I didn't post any of this on the forum because I feel that I am doing everything that the others would tell me to do. The thing that makes me nervous is that when I was first diagnosed with this cancer July 16, 2008, in one way or another I met 5 other people with OC from the age of 23 to 77 before I joined OCF...Jerry--only two of us out the 6 are alive and three of them were treated at couple of the best CCC's in the country. I know we have to tell ourselves not to look at the numbers...But that's hard to do--it turns my stomach.


Raymond