I would just like to add to this that if you do not live near Bethesda, MD where the study will be conducted, your travel expenses WILL be covered. (As long as you live in the United States). Here are the details:

Please let anyone interested know that we do provide transportation (within the USA), accommodations and a daily meal allowance ($64.00/day) for participants. We've had people fly in from South Carolina, Florida, Arizona, Idaho, Michigan, Ohio, and soon, Minnesota, Toronto and New Mexico. Participants usually stay at the Safra Family Lodge on the NIH campus. During times of frequent visits (around the gene infusion) we invite those traveling from a distance to stay at the Lodge between visits. Family can travel ( at their own expense) and stay with the participant. The NIH is a subway ride from Washington DC.

We recognize that traveling to NIH to enroll in a clinical trial creates additional stress on participants. Our small team has over 100 years of combined experience in working with clinical trial participants (yes, some of us are old) and we attempt to buffer these stressors. Research volunteers are amazing people. We want them to know and feel that during their participation.

A resource for those asking about NIH and study participation is found at the Clinical Center website www.cc.nih.gov<http://www.cc.nih.gov/> . Information about Safra Family Lodge, research participation, Phase I studies, shuttle schedules, maps, and directions to NIH are found through this site. The study website offers general information at www.drymouthstudy.com<http://www.drymouthstudy.com/> . More detailed information about this trial is found through the recent article in Oral Oncology, attached.

I am always available to speak directly with anyone interested in this study. Please feel free to provide my email [email protected]<mailto:[email protected]> and cell 301-943-4315 or forward this email.

Thanks.
Linda