| Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi Linda. My husband couldn't stand having the ace bandage around his stomach so he just used medical tape for sensitive skin and never had any problems. He had the PEG in for 5 months. The Radiation Oncologist's nurse called and arranged for the home delivery of the PEG "stuff". They home delivered cans of "food", syringes, gauze pads with the slit already in them, pump, pole etc. Don't be surprised if they don't give you much information on the care of the PEG. It's good that you are looking into all this now. I felt so lost when John had his put in. I asked the people in Interventional Radiology where he had it put in and also the nurses in the Short Procedure Unit where he recovered and they were all clueless as to how to take care of it. Hang in there!
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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