| Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | YEAH! I am home. Got home yesterday, but not feeling very well. I can not swallow at all, and so have a hard time getting all the mucous up from the pneumonia. My tongue is horrible and bleeds at the drop of a hat. I do ahev the pain under control now, and have more meds than I ever thought possible. I now have to take stuff for acid reflux, motility, and yeast in my mouth. On another note I made many wonderful nurse friends while at the hospital and was able to be a light to them on the oncology floor. They had some sad times while I was there, two people passed away and they had several code blues on my floor. They atually said it is not very often that someone gets to go home. I also posted a pic of me and my favorite nurse on my facebook profile. Now you all can get a name with a face. I do have some radiation burns, bur you can barely see them and they almost look tan.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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