Pam:
My husband was diagnosed with SCC IVA BOT a little over a year ago. He also received TPF (Taxotere, 5FU, and Cisplatin) x2 and then 35 RT with weekly Carboplatin, Erbitux, and Taxol. He developed the worst mucositis the doctor has ever seen so trays were out of the question as was any kind of mouthwash. he had 12 extractions prior to treatment and it was put to us like we had no options other than removal. This came from MO, RO, and dentist. since treatment ended, he produces zero saliva. he rinses umpteen times a day and brushes 3 or 4 times but his gums continue to recede and cause abcesses. He has lost 3 teeth in the last two months. We are looking for a dentist ourselves with HNC experience as we think he is going to have to have all teeth removed and dentures.
**** ON A HAPPY NOTE **** Had PET scan in July and MO used the words CURED so we are going to take him at his word.


Traci
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Spouse to Lew (59)(5 family members DX)
SCC IVA/T1N2M0 BOT DX 9/08 /Tonsillectomy(cl)/ TX 12/08 (TPF)x2 /RT x35 w 7 wkly (Taxol, Carboplatin, Erbitux) Finish 4/09 / Port /no peg lost 105lbs/ 2/10 CT clear/HBOT x30/all teeth out and implants placed
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