Hello Folks,I was walking today think about the past couple of months. I thought I would share my experience
I had a hard treatment, My neck looked like raw meat, I lost my voice after about 20 treatments and I was 100% dependent on the PEG. I was very lucky to have an incredible support group including my wife and kids. I had lots of pain and was taking morphine for several months.

After several weeks post TX things did get better. I remember my first drink of water, after about 3 weeks my voice came back, though I sounded like a trol. at 5 weeks post I was off the Morphine and fentanl patches.

Over the last 10 weeks I have tried to walk almost every day, I am very slow and weak but still get to put one foot in front of the other. It is tough when old men in walkers pass me!

About a month ago I started to have fluid come through my nose when I drank fluid, I went to a speach therapist and have that mostly straightened out. They said it was very common for our cancer

The best news is now I am eating like a horse! I do take a sip of ensure with every bite, greese up the throat and I am finally gaining some weight.I also drink Muscle Milk, water is still iffy on my nose. I lost 35 pounds and have bird legs! With this new eating craze I do not use my Peg anymore so I hope to get it out shortly.

So other than the dry mouth and weakness I am OK. I know from reading all the great info on this site that it takes a long time to recover so I am just taking it day by day!

Steve


70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!