 "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Hi Alpaca and welcome to the best site you'd never want to be a part of! I too have had 'the full works' and yes, your wrist is going to look gruesome for a while. I took to wearing a knit cuff to avoid stares and comments from strangers, as well as my own discomfort. However, it will get better, I promise!
As far as your tongue, have you gotten any instruction on 'stretching' exercises, for both your jaw and tongue? If not, please ask for them and do them! They really help. A lot.
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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