Boy Charm, did you just say a mouth full. I found that I knew more than the "support team" at the RO's office...it seems that H&N cancer carrys it's own set of problems and is not on the their radar, etc.

I am sitting here stewing from Angelia's experience with her PEG insertion, etc. Do these doctor's not know how foreign the PEG and port feel to a cancer patient still reeling from the news of their diagnosis. I do think that if all of this was being done at a CCC, perhaps there would be better coordination and support. But, for those of us who used local doctors, it takes a lot of work to get everyone on the same page. Thank God for the very kind and hard working infusion nurses at our MO's clinic for helping me get the care and supplies for Bill's PEG. It wasn't their's to handle but they took it on.

Take care Charm...I enjoy your posts,

Deb