Brian

I had read this very informative article before and used it as a basis of discussion with my first speech/swallow therapist as well as my second (VitalStim) speech pathologist. It was actually somewhat depressing to me when I read it as I pretty much track the indicia for "severe" dysphagia with limited outcome (Excision of tumor at base of tongue right down to the hyboid bone with perineural involvement then reradiation post surgery on already radiated area)
Nevertheless, I would be glad to compile an OCF patients' perspective. Not quite sure of the mechanics you envision for comments to flow to me but confident it is doable. Maybe a new thread?
Ironically, I am off today for my fourth Modified Barium Swallow test late this afternoon.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13