 Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Noor,
Welcome to oral cancer forum. I too had a total laryngectomy in August of 2001. I have a TEP so do not need the electrolarynx which is good since it doesn't work for me. There are only a few of us that have been on this forum that have had this surgery. Currently there is another woman Katrina053 who has posted in the AFTER TREATMENT section that is looking for others experience after this surgery. Maybe you can help her. She is having a lot of problems with swelling.
I hope you heal quickly from your latest surgery and take the others advice to avoid trismus. It can sneak up on you.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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