 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | At Moffitt I was given a CT scan w/ contrast for head area after about 3 months that also included my upper lungs. It showed "areas that can not be excluded" in my lungs. Dr's said not to worry.....yeah right so they did another one in another 2 months and while the first areas had cleared there were 2 new spots in the lungs so we did another one in another 3 months and this time finally I got an all clear.
Not offering advice, just what happened to me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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