Mark,

Getting the Gtube is both a blessing and a curse. It does deliver the needed nutrients and sustenance that you will need to get through these treatments and afterwards. But as Wendy said it can be trouble also as it is an open wound to the outside per se. I just took Brandy in this week on hers as it is red, irritated, painful and they put her on antibiotics for the third time. Causing other issues we are dealing with too so they will be changing it out next week. I would like to take it out but we are no where near that yet either and we are 3 and 1/2 months post treatment. frown

I took Brandy in for a follow up with her maxillofacial surgeon yesterday and one of her teeth on top was loose and she only has 5 left up there. They xrayed it and we will be going in soon to have that tooth and bone taken out surgically, just day surgery but it sets us back on trying to get away from from the damn Gtube.

Good luck to you I will be thinking and praying for you as you finish your treatments. By the way now that you are getting the tube if you are interested I have 7 cases of Jevity 1.2 for tube feedings that we can't use as after we finished treatments Brandy developed type 1 diabetes and we had to switch off the Jevity to Glucerna to stabalize her blood sugars. It is free if you want it the insurance paid for it and won't take it back and so far the doctors offices I have asked if they would take it and give it to patients that may need it have said sorry.

Just thought I would offer it to you if you want, I am less then 10 minutes from Tigard.

Bonnie


CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years

2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09