Was the cancer on your base of tongue or your mobile tongue? For my husband, it was at the base.

I know you probably realize you aren't getting nearly enough fluids or calories. Radiation keeps working after treatment, I recommend planning now to have daily IV treatments through the rest of your treatment and the week following as well. Dehydration can land you in the hospital and make you feel magnitudes worse than you are already feeling. Our insurance covered the cost of home IV infusions. Many do, you just have to ask your insurance company.

What are you taking for your calories? My husband was drinking watered down Boost at this stage of the game...yum! It's not about taste or flavor...it's all about how much you can choke down at this stage of the game.

Do you have any break thru pain medication or magic mouthwash to temporarily numb you mouth so you can try to down more calories and liquids in a day?



Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.