Brick, I am a little confused. You have a positive node and a hot spots on the tonsils and base of the tongue found in a PET scan, classic primary locations for this cancer. What makes you think that those two locations are not the primary and you need to get confirmation of where the primary is? Seems obvious.

Given the fact that you have a significant oral finding of the primary (high SUV on the PET in those locations), and at least a unilateral cervical node involvement, you need to be moving towards a treatment facility with a comprehensive multidisciplinary team approach, not an ENT, though they will likely have one or another H&N surgeon as part of the team. Depending on the extent of of both the primary and the cervical metastasis, you are looking at radiation likely with chemo. Some hospitals are now completely convinced that neoadjunctive chemo-radiation, in which the chemo is given for the first few weeks by itself, is the way to go, as it reduces the cancers size, and that then requires less grays of radiation to deal with. (Radiation itself has long term quality of life issues, the gift that keeps on giving we often say here). Other institutions are believers in simultaneous radiation and chemo. Surgical removal of the tonsil and/or cervical nodes via a neck dissection may or may not be indicated after these. In my lay person's opinion, surgery on the base of the tongue is something you want to avoid as it results in long term quality of life issues too often.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.