Hi ES,

Im the one who went thru PEG tube *heck. I have had to learn many ways to adapt to the liquid feedings. Its easier for me to write it than to search for some of the old posts.

1. Gravity and bolus feedings were way too fast and made me ill. The formula was too strong too.

2. If you dont have one get on immediately, the pump. I used it for overnight feedings which helped cut down what I had to do during the day. This is what got me thru OC. Im going to tell you info like you have the pump.

3. Start out with 3 cans formula and 2 cans water. A bag typically holds almost 5 cans.

4. At this level of mixture you will probably need to do this both night and day to get your full amount necessary.

5. Run it on only 20ml per hour. After 4 days kick it up to 30. If you are still doing ok after about 3 days then try 40. Then jump to 60 after 3 days, 80 after 2 days. Keep it there for about a week. If you move up too fast you may have to go back down.

6. After you are comfortable with 80 for at least a week move it up to 100. Keep it there a couple days then 140. Just keep moving it up til you hit about 180, just make sure to do it gradually so you dont need to go backwards.

7. Right along with pushing up the speed, gradually decrease the water. In the end I was at 180 with 4 cans and 1/2 water.

8. Talk to the doctor who is ordering the supplies. Better yet is the nutritionist who is familiar with PEG feedings. I went thru several formulas til I found the right one and learned the tricks.

9. Use benefiber mixed with water at least once per day to help with stomach/bowel issues. That can be done as a flush for the tube. I would flush it a few times per day.

10. To keep it clean, after a shower, pat it dry. Take a q-tip and antibiotic cream and put it around the peg site. Ask for guaze dressings with a slit to place on top. I used surgical tape to keep it in place.

11. I also taped the tube to the side of my stomach. I had a couple embarrassing moments where it peaked out and amazed small children. Then while frantically tucking it back in I got scared the store would see me on camera and think I was a shoplifter. Just imagine explaining that one.

Any other questions, please ask.